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My IBS Journey – So Far: A Roadmap (with Road Signs Along the Way)

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My IBS Journey - So Far: A Roadmap (with Road Signs Along the Way) 1987 It begins suddenly AKA: Post-infectious IBS Sick in Hawaii 1. Visits to local Doctors Lots of tests 1988-89. 2. Diagnosis of IBS and Peptic Ulcer 1988 3. 1 year spent visiting a chiropractor 4. 1st Elimination Diet given by a holistic Doctor 5. (lots more icky tests) Visits to far-flung Dr's. doing IBS research 1990-1992 road trips (& flying) to: a) Dr. Marvin Schuster, Johns Hopkins, MD b) Dr. Arnold Wald, Pittsburgh, PA c) Dr. Miner, Kansas City, MO 6. 1 year of neuromuscular massage therapy 7. Many visits to an "alternative" chiropractor who used magnets and "applied kineseology" 8. 1st of many visits to a nutritionist 9. Many visits to Dr. Norman Sohn, NYC colorectal surgeon had a "Galvanic Stimulation" machine. Supposed to help a spastic puborectalis muscle. That plus other "cures" too awful to go into here. 10. Fiber supplements. First they worked, then not. 11. Trial of Rifaximin (2002) Antibiotic as per book by Dr. Pimentel 12. Bentyl, Levsin don't help (antispasmodics) 13. Eating less and less variety, anxieties grow. 14. Life is ruled by IBS 15. Visit to UNC to se Dr. Drossman *Blog coming devoted to this visit 16. 3 months Michael Mahoney IBS Hypnosis Tapes 17. 8 sessions Cognitive Behavior Therapy 18. And yet another nutritionist- this time to try gluten-free 19. Physical therapy for 1 year - Pelvic Floor Dysfunction 20. 5 days on Amitiza (infinity sign) Still searching now doing this blog very therapeutic Road Signs: IBS/D changes to IBS/C OMG! This is all guesswork They know nothing! I don't eat before I go anywhere I start skipping lunch FODMAP Diet does not work for me Tempted to do crazy expensive blood test Everything I try makes me worse Cipro seems to help but too risky to take long-term Solitary life has arrived Danger! Social anxieties mounting My IBS Roadmap Key: Desperate Crazy Detour Well-thought-out plan (researched) Recommended (advice)

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